Effective Date: July 12, 2026
This Cookies Policy explains how the PNH & Aplastic Anemia Family Alliance (“PNHAA,” “we,” “our,” or “us”) uses cookies and similar technologies when you visit our website.
By continuing to use our website, you consent to the use of cookies as described in this policy unless you disable them through your browser or cookie preferences.
What Are Cookies?
Cookies are small text files stored on your computer, smartphone, tablet, or other device when you visit a website.
Cookies help websites function properly, remember your preferences, improve performance, and provide information about how visitors use a website.
Cookies cannot access information stored elsewhere on your device and generally do not identify you personally unless you voluntarily provide identifying information.
Why We Use Cookies
PNHAA uses cookies and similar technologies to:
- Ensure the website functions properly.
- Remember visitor preferences.
- Improve website performance.
- Understand how visitors use our website.
- Identify technical issues.
- Enhance accessibility and usability.
- Protect against fraud and malicious activity.
- Improve educational resources and user experience.
Types of Cookies We Use
Essential Cookies
Essential cookies are necessary for the operation of our website and cannot be disabled through our website settings.
These cookies may be used to:
- Maintain website security.
- Remember session information.
- Support website functionality.
- Prevent fraudulent activity.
Performance & Analytics Cookies
Performance cookies help us understand how visitors interact with our website so we can improve content, navigation, and overall user experience.
Information collected may include:
- Pages visited.
- Time spent on pages.
- Traffic sources.
- General geographic location.
- Browser and device information.
- Website performance data.
This information is generally aggregated and does not directly identify individual visitors.
Functional Cookies
Functional cookies remember your preferences and improve your experience when returning to our website.
Examples include:
- Language preferences.
- Accessibility settings.
- Cookie preferences.
- User interface preferences.
Embedded Content Cookies
Our website may include embedded content provided by third parties.
Examples include:
- YouTube videos.
- Google Maps.
- Social media content.
- Donation platforms.
These providers may place their own cookies according to their individual privacy policies.
Third-Party Services
PNHAA may use trusted third-party services to improve website performance and provide certain features.
Examples may include:
- Google Analytics
- Google Search Console
- YouTube
- Google Maps
- Cloudflare
- Payment processors
- Email newsletter providers
- Social media platforms
These third parties may use cookies or similar technologies in accordance with their own privacy policies.
How Long Cookies Remain
Cookies may be stored for different lengths of time depending on their purpose.
Generally, cookies fall into two categories:
- Session Cookies – Deleted automatically when you close your browser.
- Persistent Cookies – Remain on your device until they expire or are manually deleted.
Managing Cookies
Most web browsers allow you to:
- View stored cookies.
- Delete cookies.
- Block cookies.
- Block cookies from specific websites.
- Receive notifications before cookies are stored.
Please note that disabling certain cookies may affect website functionality and your overall experience.
Browser Settings
You can typically manage cookies through your browser settings.
Instructions are available through your browser’s help documentation.
Popular browsers include:
- Google Chrome
- Mozilla Firefox
- Microsoft Edge
- Apple Safari
- Opera
Do Not Track Signals
Some web browsers offer a “Do Not Track” feature.
Because there is currently no universally accepted standard for responding to these signals, PNHAA may not respond to all Do Not Track requests.
International Visitors
If you access our website from outside the United States, cookies may be stored on your device in accordance with this policy and applicable laws.
You are responsible for complying with your local privacy laws regarding the use of our website.
Changes to This Policy
PNHAA may update this Cookies Policy from time to time to reflect changes in technology, website functionality, legal requirements, or organizational practices.
Changes become effective upon publication on this page.
Related Policies
This Cookies Policy should be read together with our:
- Privacy Policy
- Privacy & Confidentiality Policy
- Terms of Use
- Accessibility Statement
Contact Us
If you have questions regarding this Cookies Policy, please contact us.
PNH & Aplastic Anemia Family Alliance (PNHAA)
Website: https://pnhaa.org
Email: legal@pnhaa.org
Our Commitment
PNHAA is committed to using cookies responsibly and transparently. We use cookies only to improve the performance, security, accessibility, and functionality of our website while respecting your privacy. Our goal is to provide a safe, informative, and user-friendly experience for every visitor seeking support, education, and resources related to PNH and aplastic anemia.