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Effective Date: July 12, 2026

Welcome to the website of PNH & Aplastic Anemia Family Alliance (“PNHAA,” “we,” “our,” or “us”). By accessing or using this website, you agree to be bound by these Terms of Use. If you do not agree with these Terms, please discontinue use of this website.

These Terms govern your access to and use of all content, services, resources, and information available through PNHAA.

Purpose of This Website

PNHAA is a nonprofit organization dedicated to supporting individuals and families affected by Paroxysmal Nocturnal Hemoglobinuria (PNH) and aplastic anemia through education, patient navigation, advocacy, financial assistance programs, and community resources.

The information provided on this website is intended for educational and informational purposes only.

Acceptance of Terms

By using this website, you acknowledge that you have read, understood, and agree to comply with these Terms of Use and all applicable laws and regulations.

If you use this website on behalf of an organization, you represent that you have authority to bind that organization to these Terms.

Medical Disclaimer

PNHAA is not a healthcare provider, medical practice, hospital, or insurance company.

Nothing on this website should be interpreted as medical advice, diagnosis, treatment recommendations, or medical opinions.

Always consult your physician or qualified healthcare provider regarding any medical condition or treatment decisions.

Never disregard professional medical advice or delay seeking treatment because of information found on this website.

In the event of a medical emergency, call 911 or contact your local emergency services immediately.

No Professional Relationship

Your use of this website does not create a physician-patient, attorney-client, counselor-client, or other professional relationship with PNHAA or its volunteers, staff, directors, advisors, or contributors.

Educational Content

PNHAA strives to provide accurate and current educational information. However, medical research, treatment guidelines, and healthcare practices evolve over time.

We make no guarantees regarding the completeness, accuracy, reliability, or timeliness of any information published on this website.

You should independently verify important information with your healthcare providers.

Patient Navigation

PNHAA may provide patient navigation services to help individuals locate educational resources, treatment centers, financial assistance programs, and support services.

Patient navigation is intended solely to provide general guidance and resource information.

PNHAA does not recommend specific physicians, hospitals, medications, treatments, or medical procedures.

All healthcare decisions remain the responsibility of you and your healthcare team.

Financial Assistance Programs

Any financial assistance offered by PNHAA is subject to available funding, eligibility requirements, and program guidelines.

Submitting an application does not guarantee approval or funding.

PNHAA reserves the right to modify, suspend, or discontinue assistance programs at any time.

Donations

Donations made to PNHAA support our charitable mission and programs.

Unless otherwise specified by law or our Donation Policy, contributions are non-refundable.

Restricted donations will be used for their designated charitable purpose whenever reasonably possible.

Intellectual Property

Unless otherwise indicated, all website content, including text, graphics, logos, images, icons, videos, downloadable materials, designs, and other content is the property of PNHAA or its licensors and is protected by applicable copyright, trademark, and intellectual property laws.

You may:

  • View website content for personal, non-commercial use.
  • Print individual pages for personal reference.
  • Share links to our website.

You may not:

  • Copy or reproduce substantial portions of our content.
  • Modify or create derivative works.
  • Sell or redistribute our materials.
  • Use our trademarks without written permission.

Acceptable Use

You agree not to use this website to:

  • Violate any law or regulation.
  • Upload malicious software or harmful code.
  • Attempt unauthorized access to our systems.
  • Disrupt website operations.
  • Submit false or misleading information.
  • Harass, threaten, or abuse others.
  • Infringe upon the rights of others.

User Submissions

If you submit comments, stories, photographs, testimonials, or other content to PNHAA, you represent that:

  • You own or have permission to submit the content.
  • The content does not violate another person’s rights.
  • The information provided is accurate to the best of your knowledge.

Unless otherwise agreed in writing, you grant PNHAA a non-exclusive, royalty-free license to use submitted content for educational, promotional, and charitable purposes.

PNHAA will not publish identifying patient information without your express permission.

Third-Party Links

This website may contain links to third-party websites including hospitals, nonprofit organizations, treatment centers, government agencies, clinical trial registries, pharmaceutical companies, and other resources.

These links are provided solely as a convenience.

PNHAA does not control or endorse third-party websites unless expressly stated and is not responsible for their content, privacy practices, or availability.

No Endorsement

References to healthcare providers, hospitals, medications, pharmaceutical companies, products, organizations, or services are provided for informational purposes only.

Unless expressly stated, such references do not constitute an endorsement, recommendation, or preference by PNHAA.

Sponsorship Independence

PNHAA may receive donations, grants, sponsorships, or other financial support from individuals, foundations, corporations, or healthcare organizations.

Financial support does not influence our educational content, patient navigation services, grant decisions, or organizational mission.

Disclaimer of Warranties

This website and all information provided herein are offered on an “as is” and “as available” basis without warranties of any kind, express or implied.

PNHAA disclaims all warranties including, but not limited to, merchantability, fitness for a particular purpose, accuracy, availability, and non-infringement.

Limitation of Liability

To the fullest extent permitted by law, PNHAA and its officers, directors, employees, volunteers, advisors, and affiliates shall not be liable for any direct, indirect, incidental, consequential, special, or punitive damages arising from or related to your use of this website or reliance upon its content.

Indemnification

You agree to indemnify and hold harmless PNHAA and its officers, directors, employees, volunteers, advisors, and affiliates from any claims, liabilities, damages, expenses, or legal fees arising from your violation of these Terms or misuse of this website.

Accessibility

PNHAA is committed to providing an accessible website for all visitors. If you experience difficulty accessing any content, please contact us so we can provide assistance and continue improving accessibility.

Privacy

Your use of this website is also governed by our Privacy Policy, which explains how we collect, use, and protect your personal information.

Changes to These Terms

PNHAA reserves the right to update these Terms of Use at any time.

Changes become effective upon posting to this page with an updated Effective Date.

Your continued use of the website constitutes acceptance of any revised Terms.

Governing Law

These Terms of Use shall be governed by and construed in accordance with the laws of the State of North Carolina, without regard to its conflict of law principles.

Any legal proceedings arising from these Terms shall be brought in a court of competent jurisdiction located within North Carolina, unless otherwise required by applicable law.

Contact Us

If you have questions regarding these Terms of Use, please contact us.

PNH & Aplastic Anemia Family Alliance (PNHAA)
Website: https://pnhaa.org
Email: legal@pnhaa.org

Our Commitment

PNHAA is committed to serving patients, caregivers, and families with compassion, integrity, transparency, and respect. These Terms are intended to protect both our visitors and our organization while ensuring our website remains a trusted educational resource for the PNH and aplastic anemia community.