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Effective Date: July 12, 2026

The PNH & Aplastic Anemia Family Alliance (“PNHAA,” “we,” “our,” or “us”) respects intellectual property rights and is committed to protecting the original content created by our organization while also respecting the copyrights and intellectual property of others.

This Copyright Policy explains ownership of content published on the PNHAA website, how our content may be used, and the procedures for reporting alleged copyright infringement.

Ownership of Website Content

Unless otherwise indicated, all content published on the PNHAA website is the property of PNHAA or is used with permission from the respective copyright owner.

This includes, but is not limited to:

  • Articles and educational content
  • Patient resources
  • Graphics and illustrations
  • Logos and branding
  • Photographs
  • Videos
  • Infographics
  • Downloadable documents
  • Website design and layout
  • Original research summaries
  • Newsletters
  • Social media content

All applicable copyrights, trademarks, and other intellectual property rights are reserved unless otherwise stated.

Permitted Personal Use

Visitors may use PNHAA content for personal, educational, and non-commercial purposes.

You may:

  • Read and view website content.
  • Download publicly available resources for personal use.
  • Print articles for personal reference.
  • Share links to our website.
  • Share content through social media using platform sharing features.
  • Reference our educational materials with appropriate attribution.

Educational Use

Educational institutions, healthcare professionals, nonprofit organizations, patient advocacy groups, and community organizations may reference or share limited portions of PNHAA content for educational purposes, provided that:

  • Proper credit is given to PNHAA.
  • The content is not modified in a misleading manner.
  • The content is not sold.
  • A link to the original source is provided whenever practical.

Prohibited Uses

Without prior written permission from PNHAA, you may not:

  • Copy entire articles or publications.
  • Republish substantial portions of our content.
  • Modify or create derivative works.
  • Sell or commercially distribute our materials.
  • Use our logos or trademarks.
  • Remove copyright notices.
  • Present our content as your own.
  • Use our content in a misleading or deceptive manner.
  • Use automated tools to reproduce large portions of our website.

Attribution

When quoting or referencing limited portions of PNHAA content, appropriate attribution should include:

  • PNH & Aplastic Anemia Family Alliance (PNHAA)
  • The title of the article or resource (when applicable)
  • A link to the original webpage whenever reasonably possible

Logos & Trademarks

The PNHAA name, logo, trademarks, service marks, slogans, and branding elements are valuable intellectual property of the organization.

They may not be used without prior written permission except where permitted by law.

Permission to reference PNHAA does not include permission to use our logo or branding.

Patient Stories & Testimonials

Patient stories, testimonials, photographs, videos, and other personal submissions remain subject to the permissions granted by the individual providing the content.

These materials may not be copied, republished, or redistributed without authorization from both PNHAA and, where applicable, the individual who shared the content.

Third-Party Content

Some materials published on the PNHAA website may be owned by third parties.

This may include:

  • Logos of partner organizations.
  • Photographs licensed for use.
  • Embedded videos.
  • Government publications.
  • Research citations.
  • Medical illustrations used with permission.

Ownership of third-party materials remains with their respective copyright holders.

Fair Use

Nothing in this policy is intended to limit rights provided under applicable copyright laws, including fair use or other statutory exceptions.

Individuals relying upon fair use are responsible for ensuring their use complies with applicable law.

Reporting Copyright Infringement

If you believe material appearing on the PNHAA website infringes your copyright, please notify us in writing.

Your notice should include:

  • Your name and contact information.
  • A description of the copyrighted work.
  • The URL or location of the allegedly infringing material.
  • A statement that you believe the use is unauthorized.
  • A statement that the information provided is accurate.
  • Your electronic or physical signature.

PNHAA will promptly review all legitimate copyright concerns and take appropriate action when warranted.

Reporting Unauthorized Use of PNHAA Content

If you discover unauthorized use of PNHAA content, trademarks, educational materials, or other intellectual property, we encourage you to notify us.

We reserve the right to pursue appropriate legal remedies to protect our intellectual property.

Permission Requests

Individuals or organizations wishing to reproduce, republish, translate, distribute, or otherwise use PNHAA materials beyond the uses described in this policy should obtain prior written permission.

Permission requests should include:

  • Your name or organization.
  • The material you wish to use.
  • The intended purpose.
  • Where the material will appear.
  • The anticipated audience.

Changes to This Policy

PNHAA reserves the right to update this Copyright Policy at any time.

Any revisions become effective upon publication on this website.

Contact Us

If you have questions regarding this Copyright Policy or wish to report copyright concerns, please contact us.

PNH & Aplastic Anemia Family Alliance (PNHAA)
Website: https://pnhaa.org
Email: legal@pnhaa.org

Our Commitment

PNHAA is committed to protecting the intellectual property that supports our mission while encouraging the responsible sharing of trusted educational resources. We welcome appropriate educational use of our content and believe that respecting intellectual property helps ensure accurate information continues to reach patients, caregivers, healthcare professionals, and families affected by PNH and aplastic anemia.