DONATE TODAY

Effective Date: July 12, 2026

The PNH & Aplastic Anemia Family Alliance (“PNHAA,” “we,” “our,” or “us”) is deeply grateful for the generosity of our donors, sponsors, foundations, and community partners. Every contribution helps us fulfill our mission of supporting individuals and families affected by Paroxysmal Nocturnal Hemoglobinuria (PNH) and aplastic anemia through education, patient navigation, financial assistance, advocacy, and community resources.

This Donation Policy explains how donations are accepted, managed, acknowledged, and used by PNHAA.

Our Commitment to Donors

PNHAA is committed to transparency, accountability, and responsible stewardship of every contribution entrusted to our organization.

We promise to:

  • Use donations to advance our charitable mission.
  • Manage donated funds responsibly.
  • Honor donor intent whenever reasonably possible.
  • Protect donor privacy.
  • Provide accurate acknowledgments and receipts.
  • Operate with integrity, transparency, and accountability.

Accepted Forms of Donations

PNHAA may accept charitable contributions including, but not limited to:

  • One-time monetary donations
  • Recurring monthly donations
  • Corporate donations
  • Foundation grants
  • Memorial and tribute gifts
  • Employer matching gifts
  • Fundraising event proceeds
  • In-kind donations
  • Sponsorship contributions
  • Online donations
  • Check or electronic payments

PNHAA reserves the right to decline any donation that is inconsistent with our mission, values, legal obligations, or organizational policies.

Use of Donations

Unless otherwise designated by the donor and accepted by PNHAA, donations may be used where they are needed most to support our charitable mission.

Examples include:

  • Patient navigation services
  • Emergency financial assistance
  • Educational resources
  • Community outreach
  • Website development and maintenance
  • Advocacy initiatives
  • Program development
  • Administrative operations
  • Fundraising activities
  • Technology and security
  • Volunteer support
  • Professional services

Responsible administrative and operational expenses are essential to delivering our programs and services effectively.

Restricted Donations

Donors may designate gifts for a specific program or purpose when such restrictions are accepted by PNHAA.

Examples may include:

  • Emergency Assistance Fund
  • Patient Education
  • Research Awareness
  • General Operating Support
  • Memorial Fund

Restricted donations will be used for their intended charitable purpose whenever reasonably possible.

If circumstances make a restriction impractical or impossible to fulfill, PNHAA may, consistent with applicable law, redirect the funds to a closely related charitable purpose.

Unrestricted Donations

Unrestricted donations allow PNHAA to respond to the greatest needs of patients and families and provide flexibility in delivering programs and services.

Recurring Donations

Donors who choose recurring giving authorize PNHAA or its payment processor to charge the selected payment method according to the donor’s chosen schedule.

Recurring donations may be modified or canceled at any time by contacting PNHAA or using the donor management tools provided by our payment processor.

Donation Receipts

PNHAA will provide a donation acknowledgment or receipt for contributions as required by applicable law.

Donors are responsible for retaining receipts for their personal tax records.

PNHAA does not provide tax advice.

Tax Deductibility

Tax deductibility of charitable contributions depends upon applicable federal, state, and local laws.

Donors should consult their tax advisor regarding the deductibility of any contribution.

Donation Refunds

Donations are generally considered final and non-refundable.

Refund requests may be considered on a case-by-case basis for situations involving:

  • Duplicate transactions
  • Processing errors
  • Unauthorized transactions
  • Other exceptional circumstances

Refund requests should be submitted promptly after the donation is made.

PNHAA reserves the right to approve or deny refund requests at its discretion.

In-Kind Donations

PNHAA may accept certain non-cash contributions including goods, services, gift cards, travel assistance, lodging assistance, or other items that further our charitable mission.

Acceptance of in-kind donations is subject to organizational need and available resources.

Corporate Sponsorships

PNHAA welcomes sponsorships from businesses, foundations, healthcare organizations, and other partners whose support aligns with our mission.

Sponsorship does not constitute endorsement by PNHAA.

Sponsors do not influence:

  • Educational content
  • Patient navigation services
  • Financial assistance decisions
  • Editorial content
  • Organizational governance

Donor Privacy

PNHAA respects donor privacy.

We do not sell, rent, trade, or share donor information for commercial purposes.

Donor information is handled in accordance with our Privacy Policy.

Anonymous Donations

Donors may request that their contribution remain anonymous.

PNHAA will honor reasonable requests for anonymity whenever legally and administratively possible.

Recognition of Donors

PNHAA may recognize donors in publications, annual reports, websites, fundraising materials, or other communications unless anonymity has been requested.

Ethical Fundraising

PNHAA is committed to ethical fundraising practices.

We will never knowingly misrepresent:

  • Our mission
  • How donations are used
  • The impact of contributions
  • Our programs or services

We are committed to honest, respectful, and transparent communications with all donors.

Fraud Prevention

PNHAA employs reasonable safeguards to protect donors and the organization against fraud, misuse of charitable assets, and unauthorized transactions.

Suspected fraudulent activity may be reported to appropriate authorities.

Policy Changes

PNHAA reserves the right to modify this Donation Policy at any time.

Updated versions will become effective upon publication on this website.

Contact Us

If you have questions regarding this Donation Policy, please contact us.

PNH & Aplastic Anemia Family Alliance (PNHAA)
Website: https://pnhaa.org
Email: donations@pnhaa.org

Our Promise to Donors

Your generosity makes hope possible. Every donation represents trust in our mission and a commitment to helping families facing PNH and aplastic anemia. We pledge to use every contribution responsibly, transparently, and compassionately to maximize its impact and ensure that no family faces their journey alone.