Aplastic Anemia and PNH Treatment Centers in Alaska
Finding experienced care is especially important for people diagnosed with aplastic anemia, paroxysmal nocturnal hemoglobinuria (PNH), or an aplastic anemia and PNH overlap diagnosis. These rare blood disorders may require treatment from hematologists familiar with bone marrow failure, immunosuppressive therapy, complement inhibitor medications, blood transfusion support, and blood or marrow transplantation.
Alaska does not have the same concentration of dedicated bone marrow failure and blood or marrow transplant programs found in larger states. Many Alaska patients receive laboratory monitoring, transfusions, infusions, and supportive care locally while consulting with specialists in Seattle, another major medical center, or the National Institutes of Health.
This directory connects Alaska patients and families with local hematology clinics, infusion centers, pediatric resources, out-of-state specialty programs, travel assistance, lodging, financial support, and national patient organizations.
Important: Not every hematology or oncology clinic listed below specializes specifically in aplastic anemia or PNH. Contact the clinic before scheduling to confirm whether its physicians treat your condition. Patients with severe, complicated, or uncertain diagnoses may need evaluation at an out-of-state bone marrow failure or transplant center.
Adult Hematology Care in Anchorage
Alaska Native Medical Center Oncology and Hematology Clinic
Location:
Healthy Communities Building, Fourth Floor
3900 Ambassador Drive
Anchorage, AK 99508
Phone: 907-729-1180
The Alaska Native Medical Center Oncology and Hematology Clinic provides specialty care for eligible Alaska Native and American Indian patients with cancer and blood disorders.
Potentially relevant services include:
- Hematology consultations
- Evaluation of anemia and abnormal blood counts
- Bone marrow testing and diagnostic evaluation
- Infusion therapy
- Blood and platelet transfusion coordination
- Medication management
- Supportive care
- Coordination with out-of-state specialty and transplant centers
- Patient travel and lodging coordination
The clinic’s infusion center provides scheduled intravenous treatment and supportive services. Eligibility and referral requirements should be confirmed before scheduling.
Visit the ANMC Oncology and Hematology Clinic
Learn about specialty care at Alaska Native Medical Center
Visit the Alaska Native Medical Center website
Alaska Oncology and Hematology
Location:
2925 DeBarr Road, Suite 300
Anchorage, AK 99508
Phone: 907-279-3155
Alaska Oncology and Hematology provides adult hematology and medical oncology services in Anchorage.
Potentially relevant services include:
- Hematology consultations
- Evaluation of anemia and abnormal blood counts
- Blood-disorder management
- Laboratory monitoring
- Infusion services
- Medication management
- Blood transfusion coordination
- Supportive care
- Referral to specialty or transplant centers when needed
Patients should ask whether a physician at the practice has experience treating aplastic anemia, PNH, nonmalignant bone marrow failure, or an aplastic anemia and PNH overlap diagnosis.
Visit Alaska Oncology and Hematology
Katmai Oncology Group
Location:
Providence Alaska Medical Center Campus
3851 Piper Street, Suite U340
Anchorage, AK 99508
Phone: 907-562-0321
Katmai Oncology Group provides hematology and oncology services for adults in the Anchorage area.
Potentially relevant services include:
- Hematology consultations
- Evaluation of anemia and other blood disorders
- Blood-count monitoring
- Infusion treatment
- Medication management
- Transfusion coordination
- Diagnostic testing
- Coordination with Providence Alaska Medical Center
- Referrals to out-of-state specialty programs
Patients should confirm whether an available physician treats aplastic anemia, PNH, or other nonmalignant bone marrow failure conditions.
Find Providence-affiliated hematology providers in Anchorage
Visit Providence Alaska Medical Center
Providence Cancer Center
Location:
3851 Piper Street
Anchorage, AK 99508
Providence Cancer Center offers infusion services, patient navigation, clinical research, genetic counseling, nutrition services, rehabilitation, and other support programs.
Although many services are designed for patients with cancer, parts of the center may also support patients receiving hematology treatment, intravenous medications, or transfusion-related care.
Available services include:
- Lee Sheffield Infusion Center
- Pediatric infusion services
- Patient navigation
- Clinical research
- Genetic counseling
- Nutrition counseling
- Rehabilitation
- Social and supportive services
Patients should confirm whether a physician referral is required and whether the requested treatment can be provided through the center.
View Providence Cancer Center departments
Visit Providence Cancer Center
Alaska Regional Hospital
Location:
2801 DeBarr Road
Anchorage, AK 99508
Main Phone: 907-276-1131
Alaska Regional Hospital works with community hematologists and oncologists who provide diagnostic and treatment services in Anchorage.
Hospital-based services may include:
- Laboratory testing
- Imaging
- Emergency care
- Inpatient medical care
- Blood and platelet transfusions
- Infusion treatment
- Management of treatment complications
- Coordination with community specialists
Patients should contact their hematologist or the hospital directly to determine which services are available for aplastic anemia or PNH.
Learn about oncology services at Alaska Regional Hospital
Visit Alaska Regional Hospital
Hematology and Infusion Services in Interior Alaska
J. Michael Carroll Cancer Center
Location:
1650 Cowles Street, Suite 2
Fairbanks, AK 99701
Medical Oncology: 907-452-4768
Patient Navigation: 907-458-6985
Cancer Resource Center: 907-458-6410
The J. Michael Carroll Cancer Center at Fairbanks Memorial Hospital provides medical oncology, infusion, patient-navigation, and support services for residents of Interior and northern Alaska.
Potentially relevant services include:
- Hematology and medical oncology consultations
- Laboratory monitoring
- Infusion therapy
- Blood and platelet transfusion coordination
- Medication treatment
- Clinical-trial screening
- Patient navigation
- Financial and support-resource referrals
- Coordination with specialists outside Alaska
The center reports working with specialists elsewhere in the country when patients require services that are not available locally.
Visit the J. Michael Carroll Cancer Center
Learn about medical oncology services
View patient resources and contact information
Learn about cancer-care navigation in Fairbanks
Hematology and Infusion Services in Southeast Alaska
Bartlett Medical Oncology Center
Location:
3268 Hospital Drive, Suite B
Juneau, AK 99801
Phone: 907-796-8720
Bartlett Medical Oncology Center provides medical oncology and hematology services for residents of Juneau and Southeast Alaska.
Potentially relevant services include:
- Hematology consultations
- Evaluation of anemia and abnormal blood counts
- Laboratory monitoring
- Medication management
- Coordination with the Bartlett Infusion Center
- Referrals to specialty centers outside Alaska
- Supportive care
Patients should confirm whether a physician at the center currently treats aplastic anemia, PNH, or other nonmalignant bone marrow failure disorders.
Visit Bartlett Medical Oncology Center
View the Bartlett Regional Hospital provider directory
Bartlett Regional Hospital Infusion Center
Location:
3260 Hospital Drive
Juneau, AK 99801
Main Hospital Phone: 907-796-8900
The Bartlett Regional Hospital Infusion Center provides scheduled outpatient treatments for patients in Juneau and surrounding communities.
Services include:
- Intravenous medications
- Blood transfusions
- Antibiotic therapy
- Immunotherapy
- Chemotherapy
- PICC-line care
- Port care
- Therapeutic phlebotomy
- Limited pediatric and adolescent infusion services
A physician order and advance scheduling are generally required. Patients should verify whether the center can administer their prescribed PNH medication or provide the requested transfusion support.
Learn about the Bartlett Regional Hospital Infusion Center
Visit Bartlett Regional Hospital
Care in Rural and Remote Alaska
Patients living outside Anchorage, Fairbanks, or Juneau may begin care through a local hospital, tribal health organization, primary-care clinic, or regional health corporation.
Local services may include:
- Complete blood counts
- Basic laboratory monitoring
- Emergency evaluation
- Blood transfusions
- Infection treatment
- Medication monitoring
- Telehealth appointments
- Coordination of travel to Anchorage or another city
- Referral to an out-of-state specialist
Because services vary considerably by community, patients should ask their local care team:
- Can blood counts be monitored locally?
- Are blood and platelet transfusions available?
- Can prescribed PNH infusions be administered locally?
- Is emergency blood-bank support available?
- Can the clinic coordinate telehealth with a specialist?
- Who arranges medically necessary travel?
- Which hospital should be used during an emergency?
- Can laboratory results be sent directly to the specialty center?
Pediatric Aplastic Anemia and PNH Care
Children and teenagers with aplastic anemia, PNH, or suspected bone marrow failure should be evaluated by a pediatric hematologist.
Pediatric patients may be able to receive some laboratory tests, transfusions, infusions, and supportive services in Alaska. However, specialized diagnosis, inherited bone marrow failure testing, immunosuppressive treatment planning, or blood and marrow transplantation may require referral outside the state.
Providence Pediatric Infusion Center
Location:
Providence Alaska Medical Center Campus
Anchorage, AK 99508
Providence Cancer Center includes pediatric infusion services that may help provide certain scheduled medications, transfusions, or supportive treatments under the direction of a pediatric specialist.
Families should confirm:
- Whether the prescribed treatment can be administered
- Whether a local pediatric hematologist must oversee care
- Whether an out-of-state specialist can submit treatment orders
- Whether insurance authorization is required
- Whether the child must meet age or medical eligibility requirements
View Providence Cancer Center departments
Seattle Children’s Cancer and Blood Disorders Center
Location:
Seattle, Washington
Cancer and Blood Disorders Center: 206-987-2106
Hospital Main Line: 206-987-2000
Toll-Free: 866-987-2000
Seattle Children’s is a major pediatric referral center for Washington, Alaska, Montana, and Idaho. Its Cancer and Blood Disorders Center evaluates children, teenagers, and young adults with complex blood disorders.
Potentially relevant services include:
- Pediatric hematology
- Aplastic anemia evaluation
- Bone marrow failure diagnosis
- Inherited bone marrow failure testing
- PNH evaluation
- Immunosuppressive treatment
- Blood and marrow transplantation
- Second opinions
- Multidisciplinary supportive care
- Coordination with Alaska physicians
A referral from the child’s primary-care provider or Alaska specialist is generally required.
Visit the Seattle Children’s Cancer and Blood Disorders Center
Request information about an appointment or second opinion
View pediatric referral instructions
Out-of-State Specialty Care for Adults
Alaska patients with severe aplastic anemia, PNH, an overlap diagnosis, or a possible need for transplantation may be referred to a specialty center outside Alaska.
The appropriate center depends on the patient’s diagnosis, insurance network, age, medical condition, transportation needs, and physician recommendations.
Fred Hutchinson Cancer Center and UW Medicine
Location:
Seattle, Washington
Fred Hutchinson Cancer Center and UW Medicine provide advanced hematology and blood and marrow transplant services for adults with complex blood disorders.
Potentially relevant services include:
- Aplastic anemia evaluation
- PNH evaluation and management
- Bone marrow failure consultations
- Second opinions
- Blood and marrow transplant evaluation
- Related and unrelated donor transplantation
- Clinical trials
- Long-term transplant follow-up
- Coordination with Alaska hematologists
Visit Fred Hutchinson Cancer Center
Learn about blood and marrow transplantation at Fred Hutch
National Institutes of Health Clinical Center
Location:
Bethesda, Maryland
The National Institutes of Health conducts research involving aplastic anemia, PNH, immune-based treatments, bone marrow failure, and stem cell transplantation.
NIH programs may offer:
- Diagnostic evaluation
- Expert second opinions
- Research studies
- Immunosuppressive treatment studies
- PNH research
- Bone marrow failure research
- Transplant-related studies
- Long-term monitoring
Eligibility depends on the requirements of each study. Participation may require travel to Maryland.
Search NIH Clinical Center studies
Learn about aplastic anemia from the National Heart, Lung, and Blood Institute
Blood and Marrow Transplantation
A blood or marrow transplant may be considered for certain patients with severe or very severe aplastic anemia. The decision depends on factors such as:
- Age
- Overall health
- Disease severity
- Donor availability
- Previous treatment
- Infection history
- Other medical conditions
- The experience of the transplant center
Alaska patients who need transplantation will generally be evaluated at an out-of-state transplant program. Local hematologists may continue to provide laboratory monitoring, transfusions, infection treatment, and follow-up care before or after travel.
Patients and families should ask:
- Which transplant center does my Alaska physician normally work with?
- Does the center have experience treating severe aplastic anemia?
- Can the initial consultation be completed by telehealth?
- Who will begin the donor search?
- Should siblings or other family members be HLA typed?
- Who will coordinate insurance authorization?
- Is travel assistance available?
- Where will the family stay during treatment?
- How long must the patient remain near the transplant center?
- Which follow-up services can be provided in Alaska?
Getting a Second Opinion
Because aplastic anemia and PNH are rare, patients may benefit from a second opinion when:
- The diagnosis is uncertain
- Blood counts continue to decline
- Severe or very severe aplastic anemia is suspected
- A PNH clone is identified
- Both aplastic anemia and PNH are present
- Immunosuppressive therapy is being considered
- Complement inhibitor therapy is being considered
- A blood or marrow transplant is being considered
- The current treatment is not working
- New or worsening symptoms develop
- Travel outside Alaska may be necessary
- The patient or family wants confirmation of the treatment plan
A second opinion does not necessarily require changing local physicians. An out-of-state specialist may review records and recommend a treatment plan while routine monitoring and supportive care continue in Alaska.
What to Ask Before Scheduling
When contacting a hematology clinic or specialty center, consider asking:
- Does the physician regularly treat aplastic anemia?
- Does the physician regularly treat PNH?
- Does the physician treat patients with both aplastic anemia and a PNH clone?
- Does the clinic manage nonmalignant bone marrow failure disorders?
- Can the clinic administer complement inhibitor medications?
- Can the clinic provide blood and platelet transfusions?
- Does the clinic coordinate with an out-of-state specialty center?
- Is telehealth available?
- Is a physician referral required?
- Does the clinic accept my insurance?
- Does Alaska Medicaid cover treatment and travel?
- What medical records should be sent before the appointment?
- Is patient navigation available?
- Can someone help arrange travel and lodging?
Records to Gather for an Appointment
A specialty center may request:
- Complete blood-count results
- Reticulocyte counts
- Bone marrow biopsy and aspiration reports
- Bone marrow pathology slides
- Flow-cytometry results
- PNH clone testing results
- Cytogenetic or genetic testing
- HLA typing
- Transfusion records
- Medication history
- Hospital discharge summaries
- Infection history
- Imaging reports
- Insurance information
- A list of current symptoms and questions
Ask the receiving center whether it wants actual pathology slides, laboratory files, imaging discs, or only written reports.
Alaska Native Patient Travel and Lodging
Alaska Native Tribal Health Consortium Patient Travel and Lodging
The Alaska Native Tribal Health Consortium helps coordinate travel, transportation, and lodging for eligible Alaska Native and American Indian patients receiving care through the Alaska Tribal Health System.
Services may include:
- Travel coordination
- Lodging in Anchorage
- Ground transportation
- Assistance after arriving at the airport
- Coordination between regional health organizations and ANMC
- Help understanding Medicaid travel procedures
Patient Hotline: 844-729-8430
Eligibility, authorization, and referral requirements apply. Patients should contact their regional tribal health organization or the ANTHC Patient Hotline before traveling.
View ANTHC patient travel and lodging information
Learn about ANTHC patient care and coordination
Alaska Medicaid and Medical Travel
Alaska Medicaid
Alaska Medicaid provides health coverage for eligible residents. Depending on medical necessity, authorization, eligibility, and program rules, Medicaid may also provide assistance with travel to covered medical services that are not available locally.
Division of Public Assistance Virtual Contact Center: 800-478-7778
Medicaid Recipient Helpline: 800-780-9972
Patients should speak with their care team and Medicaid before arranging travel. Transportation and lodging generally require advance authorization.
Visit the Alaska Division of Health Care Services
Find Alaska public-assistance offices
Questions to ask include:
- Is the specialist covered?
- Is prior authorization required?
- Is airfare covered?
- Is an escort or caregiver covered?
- Is lodging covered?
- Are meals or ground transportation covered?
- Must travel be booked through an approved coordinator?
- What documents are needed before travel?
- Who should be contacted if an appointment changes?
Alaska Community Assistance
Alaska 211
Alaska 211 connects residents throughout the state with community, health, and human-service programs.
Assistance may be available for:
- Food
- Housing
- Utility bills
- Transportation
- Health services
- Prescription expenses
- Caregiver support
- Disability services
- Mental-health services
- Emergency assistance
- Local nonprofit programs
The service is free and confidential, and language interpretation is available.
Phone: Dial 211
Toll-Free: 800-478-2221
Search the Alaska 211 resource database
National Aplastic Anemia and PNH Resources
Aplastic Anemia and MDS International Foundation
The Aplastic Anemia and MDS International Foundation provides education and support for people affected by aplastic anemia, PNH, myelodysplastic syndromes, and related bone marrow failure diseases.
Resources include:
- Patient education
- Educational webinars
- Peer support
- Support groups
- Treatment information
- Clinical-trial information
- Patient and caregiver conferences
- PNH educational materials
- Travel assistance for eligible PNH patients
- A patient helpline
Helpline: 800-747-2820, Extension 2
Visit the Aplastic Anemia and MDS International Foundation
Access the PNH Patient Toolkit
Learn about the PNH Patient Travel Assistance Fund
View additional patient-support resources
National Marrow Donor Program
The National Marrow Donor Program, formerly widely known as Be The Match, supports patients who may need a blood or marrow transplant.
Resources include:
- Donor-search information
- Transplant education
- One-on-one patient navigation
- Financial-assistance information
- Peer support
- Caregiver resources
- Help preparing for transplant
- Support before and after transplantation
Visit the NMDP Patient Support Center
Learn about transplantation for severe aplastic anemia
Explore transplant financial assistance
BMT InfoNet
BMT InfoNet provides education and support for patients undergoing blood or marrow transplantation and cellular therapy.
Resources include:
- Transplant education
- Caregiver information
- Survivorship guidance
- Peer support
- Webinars
- Financial assistance for eligible patients
- Information about transplant complications and recovery
Learn about the Susan K. Stewart Patient Assistance Fund
ClinicalTrials.gov
ClinicalTrials.gov is the federal database of publicly and privately supported clinical studies.
Patients can search for studies involving:
- Aplastic anemia
- Severe aplastic anemia
- PNH
- Bone marrow failure
- Complement inhibitors
- Immunosuppressive therapies
- Blood or marrow transplantation
- New medications
Search ClinicalTrials.gov for aplastic anemia studies
Search ClinicalTrials.gov for PNH studies
Always discuss a clinical trial with a qualified hematologist before making treatment decisions.
National Organization for Rare Disorders
The National Organization for Rare Disorders provides rare-disease education, advocacy, patient-assistance information, and links to support organizations.
Visit the National Organization for Rare Disorders
Genetic and Rare Diseases Information Center
The Genetic and Rare Diseases Information Center is a federal resource that provides information about rare diseases, research, diagnosis, and patient organizations.
Visit the Genetic and Rare Diseases Information Center
Medication and Copay Assistance
Manufacturers of PNH medications and other specialty treatments may offer patient-support programs.
Assistance may include:
- Insurance-benefit verification
- Prior-authorization support
- Copay assistance for eligible patients
- Assistance for eligible uninsured or underinsured patients
- Infusion coordination
- Nurse support
- Medication education
- Travel support in limited circumstances
Eligibility and program terms may change. Patients should speak with their physician, specialty pharmacy, hospital financial counselor, or the medication manufacturer before enrolling.
Independent assistance may also be available through:
Patient Access Network Foundation
Availability depends on diagnosis, insurance status, household income, and whether a disease-specific fund is open.
Social Security Disability Benefits
Some patients who are unable to work because of severe aplastic anemia, PNH, complications, or treatment may be eligible for Social Security Disability Insurance or Supplemental Security Income.
Eligibility is based on medical evidence, work history, income, functional limitations, and other program requirements.
Learn about Social Security disability benefits
Support for Caregivers and Families
Aplastic anemia and PNH can affect the entire family. Caregivers may need help managing appointments, medication, air travel, lodging, insurance, employment responsibilities, and emotional stress.
Helpful forms of support may include:
- Patient and caregiver support groups
- Peer mentoring
- Family counseling
- Hospital social-work services
- Child-life services
- School coordination
- Medical travel assistance
- Temporary lodging
- Meal assistance
- Workplace-leave assistance
- Disability applications
- Mental-health support
Patients and caregivers can ask their hospital social worker, Alaska 211, NMDP, or the AAMDSIF Helpline for help locating appropriate services.
When to Seek Immediate Medical Care
Follow the emergency instructions provided by your hematologist. Seek urgent medical attention for symptoms such as:
- A fever at or above the threshold established by your treatment team
- Uncontrolled or unusual bleeding
- Blood in the urine or stool
- Black, tarry stools
- Severe headache
- New confusion
- Sudden weakness or numbness
- Difficulty breathing
- Chest pain
- Fainting
- Rapidly worsening fatigue
- New pain, redness, warmth, or swelling in an arm or leg
- Severe abdominal pain
- Signs of a serious infection
- Any symptom your care team has instructed you to treat as an emergency
People in rural or remote communities should make an emergency plan with their care team in advance. The plan should identify the nearest emergency facility, available transportation, who to call after hours, and when medical evacuation may be necessary.
Do not rely on an online directory during a medical emergency. Call 911, contact the local emergency service available in your community, or go to the nearest emergency department.
Help Us Keep This Directory Current
Treatment programs, physician availability, clinic locations, phone numbers, and patient-assistance programs may change.
If you represent an Alaska treatment center or know of an aplastic anemia or PNH resource that should be added, please contact PNHAA.
Please include:
- Organization or treatment-center name
- City and state
- Website
- Phone number
- Services provided
- Whether the center treats adults, children, or both
- Whether the center specifically treats aplastic anemia, PNH, or bone marrow failure
- Whether telehealth is available
- Whether the organization assists with medical travel
Medical Disclaimer
This directory is provided for general educational and informational purposes only. It is not medical advice and should not be used to diagnose a condition, select a treatment, or replace guidance from a qualified healthcare professional.
Inclusion in this directory does not constitute certification, accreditation, recommendation, or endorsement by PNHAA. Patients should independently confirm each provider’s credentials, experience, insurance participation, referral requirements, and ability to treat aplastic anemia or PNH.
Always consult your hematologist or medical team before beginning, changing, or stopping treatment.