Effective Date: July 12, 2026
The information provided by PNH & Aplastic Anemia Family Alliance (“PNHAA,” “we,” “our,” or “us”) is intended solely for educational and informational purposes. By using this website, you acknowledge and agree to the terms of this Medical Disclaimer.
Educational Purposes Only
The content available on this website, including articles, guides, patient resources, educational materials, videos, blog posts, downloadable documents, newsletters, and other content, is provided solely for general educational and informational purposes.
Nothing on this website should be interpreted as medical advice, medical diagnosis, medical treatment, or professional healthcare services.
Not Medical Advice
PNHAA is not a medical provider, healthcare facility, physician practice, or medical clinic.
Our organization does not diagnose medical conditions, prescribe medications, recommend treatments, interpret laboratory results, or provide individualized medical advice.
The information presented on this website should never replace consultation with your physician, hematologist, healthcare provider, or other qualified medical professional.
Always Consult Your Healthcare Team
Every patient is unique.
Medical decisions regarding diagnosis, treatment options, medications, clinical trials, transplantation, blood transfusions, laboratory testing, and ongoing care should always be made in consultation with your qualified healthcare providers.
Never disregard professional medical advice or delay seeking medical care because of something you have read on this website.
Medical Emergencies
If you believe you are experiencing a medical emergency, call 911 or contact your local emergency services immediately.
Do not rely on this website for emergency medical assistance.
Patient Navigation Services
PNHAA may provide patient navigation services to assist individuals and families in locating educational resources, treatment centers, financial assistance programs, support organizations, lodging, transportation resources, and other community services.
Patient navigation is intended solely to provide general information and resource guidance.
Patient navigation does not constitute medical advice, medical case management, nursing services, legal advice, or professional counseling.
No Physician-Patient Relationship
Use of this website or communication with PNHAA does not establish a physician-patient relationship, healthcare provider relationship, attorney-client relationship, counselor-client relationship, or any other professional relationship.
Any guidance provided by PNHAA should be considered informational only.
No Endorsement of Healthcare Providers
References to physicians, hospitals, treatment centers, clinics, healthcare providers, transplant programs, laboratories, or other medical facilities are provided solely as informational resources.
Unless expressly stated, PNHAA does not endorse, recommend, certify, or guarantee any healthcare provider or medical facility.
Patients should independently evaluate healthcare providers in consultation with their medical team.
No Endorsement of Medications or Treatments
References to medications, medical devices, treatment options, clinical trials, procedures, pharmaceutical manufacturers, or healthcare products are provided for educational purposes only.
PNHAA does not recommend, endorse, or promote any specific medication, treatment, therapy, procedure, or manufacturer.
Treatment decisions should always be made in consultation with qualified healthcare professionals.
Clinical Trials
Information regarding clinical trials is provided to increase awareness of research opportunities.
Participation in any clinical trial should only occur after careful discussion with your healthcare provider and the clinical research team.
PNHAA does not recommend participation in any specific clinical trial.
Research and Medical Information
Medical research continues to evolve.
Although PNHAA strives to provide accurate, evidence-based information from reputable medical sources, we cannot guarantee that all information is complete, current, or applicable to every individual.
Medical recommendations, treatment guidelines, and scientific understanding may change over time.
Financial Assistance Programs
Any financial assistance offered by PNHAA is charitable in nature and is not intended to influence medical decisions or healthcare choices.
Receiving financial assistance does not constitute medical advice or endorsement of any treatment provider.
Sponsorship & Independence
PNHAA may receive donations, grants, sponsorships, or financial support from individuals, foundations, corporations, healthcare organizations, or pharmaceutical companies.
Financial support does not influence our educational content, patient navigation services, grant decisions, or organizational mission.
PNHAA maintains editorial independence and is committed to providing balanced, evidence-based educational information.
External Resources
This website may link to hospitals, nonprofit organizations, government agencies, medical journals, clinical trial registries, pharmaceutical manufacturers, and other third-party resources.
These links are provided solely as a convenience.
PNHAA is not responsible for the content, accuracy, availability, or privacy practices of third-party websites.
No Guarantees
While we strive to provide accurate and helpful information, PNHAA makes no representations or warranties regarding the completeness, accuracy, reliability, suitability, or availability of any information provided on this website.
Information is provided “as is” without warranties of any kind.
Limitation of Liability
To the fullest extent permitted by law, PNHAA, its officers, directors, employees, volunteers, advisors, contributors, and affiliates shall not be liable for any direct, indirect, incidental, consequential, special, or punitive damages arising from your use of this website or reliance upon any information contained herein.
Your Responsibility
By using this website, you acknowledge that you are solely responsible for your healthcare decisions.
You agree to consult qualified healthcare professionals regarding any questions about your health, diagnosis, treatment, medications, or medical condition.
Acceptance of This Disclaimer
Your continued use of this website signifies your understanding and acceptance of this Medical Disclaimer.
If you do not agree with any portion of this disclaimer, you should discontinue use of this website.
Contact Us
If you have questions regarding this Medical Disclaimer, please contact us.
PNH & Aplastic Anemia Family Alliance (PNHAA)
Website: https://pnhaa.org
Email: legal@pnhaa.org
Our Commitment
PNHAA is committed to providing compassionate support, trustworthy educational resources, and practical guidance for individuals and families affected by PNH and aplastic anemia. Our goal is to empower patients through education while encouraging every individual to work closely with their healthcare team when making medical decisions.