Effective Date: July 12, 2026
The PNH & Aplastic Anemia Family Alliance (“PNHAA,” “we,” “our,” or “us”) is committed to providing limited financial assistance to eligible individuals and families affected by Paroxysmal Nocturnal Hemoglobinuria (PNH) and aplastic anemia. Our Financial Assistance Program exists to help reduce the financial burden associated with treatment, hospitalization, travel, and other medically related hardships while available funding allows.
Because our assistance program is funded entirely through charitable donations, grants, sponsorships, and fundraising efforts, assistance is limited and cannot be guaranteed.
Our Mission
The purpose of the Financial Assistance Program is to provide temporary financial relief to individuals and families experiencing hardship directly related to the diagnosis, treatment, or ongoing management of PNH or aplastic anemia.
Our goal is to help families focus on their loved one’s care during difficult times by easing certain out-of-pocket expenses associated with treatment.
Available Assistance
PNHAA may provide financial assistance for qualifying expenses, subject to available funding.
Examples of eligible expenses may include:
- Hospital parking fees
- Fuel and transportation expenses
- Lodging near treatment centers
- Meals during hospitalization or treatment
- Public transportation
- Airfare related to treatment
- Medical travel expenses
- Temporary childcare during treatment
- Other medically related emergency expenses approved by PNHAA
Assistance is intended to supplement—not replace—other available financial resources.
Program Limitations
Financial assistance is dependent upon available funding and program availability.
PNHAA reserves the right to:
- Modify assistance amounts.
- Limit the number of grants awarded.
- Suspend or discontinue the program.
- Establish annual funding limits.
- Adjust eligibility requirements as organizational needs change.
Eligibility
To be considered for financial assistance, applicants may be required to:
- Be diagnosed with PNH or aplastic anemia, or be the parent or legal guardian of an individual diagnosed with one of these conditions.
- Demonstrate financial hardship related to treatment or care.
- Provide truthful and complete application information.
- Meet any program-specific eligibility requirements.
Eligibility does not guarantee approval.
Application Process
Applicants may be asked to submit information including:
- Name and contact information.
- General description of financial need.
- Description of the requested expense.
- Estimated or actual expense amount.
- Supporting documentation when reasonably necessary.
PNHAA will collect only information reasonably necessary to evaluate the request.
Documentation
Depending on the request, applicants may be asked to provide documentation supporting the need for assistance.
Examples may include:
- Hospital appointment confirmation.
- Treatment schedule.
- Travel itinerary.
- Hotel invoice.
- Parking receipts.
- Fuel receipts.
- Other documentation reasonably related to the request.
PNHAA reserves the right to verify submitted information when appropriate.
Grant Amounts
Grant amounts are determined on a case-by-case basis and are subject to available funding.
Unless otherwise announced by PNHAA, emergency assistance grants are generally limited to a maximum amount established by the organization for each qualifying event.
Award amounts may vary depending upon available resources, demonstrated need, and program guidelines.
Payment of Assistance
Whenever practical, PNHAA may provide assistance by:
- Paying vendors directly.
- Providing hotel reservations.
- Providing fuel or grocery gift cards.
- Reimbursing approved expenses.
- Issuing other forms of charitable assistance approved by PNHAA.
PNHAA reserves the right to determine the most appropriate method of assistance.
Review Process
Applications are reviewed fairly and consistently based upon available information, organizational policies, available funding, and demonstrated need.
PNHAA may request additional information if necessary before making a determination.
All decisions made by PNHAA are final.
Conflicts of Interest
To protect the integrity of our charitable programs, board members, officers, employees, volunteers, and individuals involved in reviewing applications must disclose any potential conflicts of interest.
Individuals with a conflict of interest will not participate in decisions regarding applications in which they have a personal or financial interest.
Confidentiality
Information submitted through financial assistance applications will be treated confidentially.
Access will be limited to individuals responsible for administering the program or as otherwise required by law.
Please refer to our Privacy Policy and Privacy & Confidentiality Policy for additional information regarding how personal information is handled.
No Guarantee of Assistance
Submission of an application does not guarantee that financial assistance will be awarded.
Funding availability, program priorities, eligibility requirements, and organizational resources all influence assistance decisions.
Fraud & Misrepresentation
Applicants are expected to provide truthful and accurate information.
PNHAA reserves the right to deny assistance, request repayment, or pursue other appropriate action if false, misleading, or fraudulent information is submitted.
Tax Information
Applicants are responsible for consulting their own tax advisor regarding any tax consequences that may result from receiving charitable financial assistance.
PNHAA does not provide tax advice.
Changes to This Policy
PNHAA may revise this Financial Assistance Policy at any time to reflect changes in funding, organizational priorities, legal requirements, or program operations.
Updates will become effective upon posting to this page.
Contact Us
If you have questions regarding this Financial Assistance Policy, please contact us.
PNH & Aplastic Anemia Family Alliance (PNHAA)
Website: https://pnhaa.org
Email: legal@pnhaa.org
Our Commitment
Every dollar donated to PNHAA represents the generosity and trust of our supporters. We are committed to administering financial assistance programs fairly, responsibly, and compassionately while striving to maximize the impact of every charitable contribution. Our goal is to provide meaningful support to families facing the financial challenges that often accompany treatment for PNH and aplastic anemia, helping them focus on what matters most—the health and well-being of their loved one.