Effective Date: July 12, 2026
The PNH & Aplastic Anemia Family Alliance (“PNHAA,” “we,” “our,” or “us”) Emergency Assistance Grant Program provides limited financial assistance to eligible individuals and families experiencing financial hardship related to the diagnosis, treatment, or management of Paroxysmal Nocturnal Hemoglobinuria (PNH) or aplastic anemia.
These guidelines explain how the program operates, who may qualify, eligible expenses, and the grant review process.
Program Purpose
The Emergency Assistance Grant Program exists to help reduce the unexpected financial burden associated with treatment for PNH and aplastic anemia.
Our goal is to provide timely, compassionate assistance so families can focus on caring for their loved one rather than worrying about immediate out-of-pocket expenses.
Grant Amount
Emergency Assistance Grants are generally awarded in amounts of up to $250 per qualifying medical event, subject to available funding.
Grant amounts may be less than the maximum depending upon demonstrated need, available funding, and the specific expense requested.
PNHAA reserves the right to modify grant amounts at any time.
Who May Apply
Applicants must meet the following general requirements:
- Be diagnosed with PNH or aplastic anemia, or be the parent or legal guardian of a patient diagnosed with one of these conditions.
- Reside in the United States or U.S. territories, unless otherwise approved by PNHAA.
- Be experiencing financial hardship directly related to diagnosis, treatment, hospitalization, or ongoing care.
- Provide truthful and complete application information.
Meeting eligibility requirements does not guarantee approval.
Eligible Expenses
Examples of expenses that may qualify include:
- Hospital parking fees
- Fuel for travel to treatment
- Tolls
- Hotel or temporary lodging
- Meals during hospitalization or treatment
- Airfare for medically necessary travel
- Public transportation
- Ride-share or taxi transportation
- Childcare during treatment
- Medical travel expenses
- Emergency family support expenses approved by PNHAA
Expenses That Generally Do Not Qualify
Unless specifically approved by PNHAA, grants generally may not be used for:
- Routine household expenses
- Mortgage or rent payments
- Utility bills
- Medical insurance premiums
- Prescription medication costs
- Medical bills already covered by insurance
- Credit card payments
- Personal debt
- Legal fees
- Vacation or recreational travel
- Non-medical purchases
Required Documentation
Applicants may be asked to provide documentation supporting their request.
Examples include:
- Hospital appointment confirmation
- Hospital admission or discharge documentation
- Treatment schedule
- Hotel reservation
- Parking receipts
- Fuel receipts
- Travel itinerary
- Invoices or estimates
- Other documentation reasonably requested by PNHAA
Only information reasonably necessary to review the request will be collected.
Application Review
Applications are reviewed individually based upon:
- Eligibility
- Demonstrated financial hardship
- Relationship of the expense to treatment
- Available funding
- Program priorities
PNHAA may request additional information before making a decision.
Award Decisions
Applicants will be notified of the decision as soon as reasonably possible.
Approval decisions are made solely at the discretion of PNHAA.
All grant decisions are final.
Frequency of Assistance
Emergency Assistance Grants are intended to provide short-term relief during qualifying medical events.
Unless otherwise approved by PNHAA, assistance is generally limited to one grant per household for each qualifying medical event.
Future requests may be considered if funding remains available and eligibility requirements continue to be met.
Method of Payment
Whenever practical, PNHAA prefers to provide assistance through:
- Direct payment to vendors
- Hotel reservations
- Fuel gift cards
- Grocery gift cards
- Parking reimbursement
- Travel reimbursement
- Other approved forms of assistance
PNHAA reserves the right to determine the method of assistance.
Use of Grant Funds
Grant funds must be used solely for the approved purpose.
PNHAA may request receipts or documentation confirming appropriate use of awarded funds.
Unused or improperly used funds may be subject to repayment.
Fraud Prevention
Applicants certify that all information submitted is true and accurate.
PNHAA reserves the right to verify information, deny assistance, request repayment, or pursue appropriate legal remedies if false or misleading information is provided.
Conflict of Interest
Board members, officers, employees, volunteers, and individuals involved in reviewing grant applications must disclose any actual or potential conflicts of interest.
Individuals with a conflict of interest will not participate in reviewing or approving related applications.
Confidentiality
All applications and supporting documentation will be handled confidentially in accordance with PNHAA’s Privacy Policy and Privacy & Confidentiality Policy.
Application information will only be accessed by individuals responsible for administering the grant program or as otherwise required by law.
No Guarantee of Funding
Grant funding is limited and dependent upon charitable contributions, grants, sponsorships, fundraising activities, and available organizational resources.
Submitting an application does not guarantee financial assistance.
Policy Changes
PNHAA reserves the right to modify these Grant Program Guidelines at any time without prior notice.
Changes become effective upon publication on this website.
Contact Us
If you have questions regarding the Emergency Assistance Grant Program, please contact us.
PNH & Aplastic Anemia Family Alliance (PNHAA)
Website: https://pnhaa.org
Email: grants@pnhaa.org
Our Commitment
Every grant awarded represents the generosity of our donors and the trust they place in PNHAA. We are committed to administering this program fairly, compassionately, and responsibly while maximizing the impact of every charitable contribution. Our mission is to help families facing PNH and aplastic anemia receive meaningful support when they need it most, because no family should have to choose between caring for a loved one and paying for the basic necessities that come with treatment.